Tag: ME
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Keeping up appearances.
I was talking a to a friend today who is having Chemotherapy as part of a treatment for her MS. Knowing that she was going to lose her hair, a few weeks ago she had her hair cut short and donated her hair to the charity that makes wigs for children with cancer, a lovely…
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New Year Resolutions pt 1 Exercise
Well it’s that time of year again where we all think this will be the year we make changes and get more out off life and become happy. In reality, not much changes and by the end of the year we feel bad for not having achieved anything that feels worthwhile. Apparently the top 10…
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Regrets
As I approach 50 I have been full of regrets and disappointments in the way life has worked out, that I am not able to work or have an income, that time is running out and I haven’t done anything. Wondering where I went wrong and what would have happened if I had made different…
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PIP update
Today my PIP mandatory reconsideration arrived, quite ironic as my Motability car goes back on Monday! I had asked them to reconsider some of the points as they had said I could do things that I can’t. It seems that they know better than me what I can and can’t do and they told me…
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My Mistake
Another piece of Homework Emily was given was to describe a mistake that she had made, saying What did you do? Why did you do it? What were the consequences? How did you feel afterwards? Did you do anything to solve the mistake? Did you learn anything about your mistake? How do you feel about…
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Time and Tide Waits for No Man or Woman!
All through life we are expected to make progress, meet milestones and improve ourselves. So what do you do when you have an illness that halts progress and self development? And what do you do when you feel like your life stopped 20 years ago and you are still getting older but not moving on?…
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Oh I Do Like to Be Beside the Seaside! But It’s Hard Work
Summer holidays have started and most people are going away, looking forward to travelling and seeing new places and either relaxing or having new adventures. For people with ME/CFS (and other conditions I am sure), it’s a difficult and for many impossible. I like going to places and seeing something different. Choosing a holiday for…
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What Can I Do?
What can you do was a question asked on a facebook page the other day. I answered ” I am limited due to health problems and get so hung up on what I can’t do. It’s much better to focus on what I can do and be proud of what I acheieve, but I don’t think…
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One More Step Along The World We Go
Well I survived my birthday, got some lovely presents and visited Kitty Cafe Leeds for tea and cake 🙂 There is an amazing selection of teas and lots of cute cats so that’s me sorted We have been back again twice!! It’s not cheap as you have to pay per person per visit plus anything you eat…
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20 years and counting!
What have you been doing for the last 20 years? Me I have been busy living with ME. Here is my latest rhyme. 20 years with M.E, 20 years since things went wrong. 20 years since I lost me, 20 years, it’s far too long. 20 years of missing out, 20 years of feeling ill.…