Tag: ME

  • Daily Living with ME pt5

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    Jane Shaw
    in

    Way back in 1990 I began training to be a nurse. It was great, I loved it so much, but sadly like many other things in my life it was brought to an end by ill health. When we were assessing patients we used a model called Activities of Daily living devised by Roper Logan…

  • Daily Living with ME pt4

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    by

    Jane Shaw
    in

    Way back in 1990 I began training to be a nurse. It was great, I loved it so much, but sadly like many other things in my life it was brought to an end by ill health. When we were assessing patients we used a model called Activities of Daily living devised by Roper Logan…

  • Daily Living with ME pt3

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    by

    Jane Shaw
    in

    Way back in 1990 I began training to be a nurse. It was great, I loved it so much, but sadly like many other things in my life it was brought to an end by ill health. When we were assessing patients we used a model called Activities of Daily living devised by Roper Logan…

  • Daily Living with ME pt1

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    by

    Jane Shaw
    in

      Way back in 1990 I began training to be a nurse. It was great, I loved it so much, but sadly like many other things in my life it was brought to an end by ill health. When we were assessing patients we used a model called Activities of Daily living devised by Roper…

  • Need to let off steam

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    Jane Shaw
    in

    I am trying to be more positive and not write posts that are negative or moany, but today I really need to get this off  my chest as I am so upset. The other day someone told Emily that I only care about myself, which upset Emily. I don’t have an issue with the child,…

  • What a month!

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    Jane Shaw
    in

    June should be my happy month as it is my birthday and wedding anniversary, but it is rarely something to enjoy. Being ill for so long each anniversary and passing year marks another with no improvement in my health and no improvement in the attitudes of those around or and real progress towards proper diagnosis…

  • Millions Missing

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    Jane Shaw
    in

    Today marks #ME Action’s, Millions Missing Campaign.  This is a worldwide day of protest for those with ME/CFS. “On May 25th, 2016 #MEAction is global day of action for equality for ME. ME patients, advocates, caregivers, and allies will join together to protest of the lack of government funding for research, clinical trials and medical/public education,…

  • Overwhelmed again.

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    Jane Shaw
    in

    I am feeling totally over whelmed at the moment. I had to be rescued by RAC yesterday.  The driver seatbelt has been jamming for a while.  Rob rang dealer who said they couldn’t look at it until end of May and to ring RAC if stuck.  Yesterday it got stuck in school car park so…

  • May – ME Awareness month

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    Jane Shaw
    in

    Myalgic Encephalomyelitis (M.E.) is a disabling and chronic illness, devastating the lives of 250,000 people in the UK. May is ME awareness month, with the main day being May 12th. Help us raise awareness and raise funds for ME research. I have had ME for nearly 20 years and there is still no know diagnosis…

  • Question Time – Question 4

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    Jane Shaw
    in

    Question 4“How do you decide where to go on holiday?We always tend to go somewhere max of 3 hours away as I find the travelling hard, hubby doesn’t like long drives and Emily hates being in the car. Before we had Emily we used to go on peaceful Lakes and Mountain holidays, but airports are…