Category: Uncategorized

  • Daily Living with ME Pt2

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    Jane Shaw
    in

    Way back in 1990 I began training to be a nurse. It was great, I loved it so much, but sadly like many other things in my life it was brought to an end by ill health. When we were assessing patients we used a model called Activities of Daily living devised by Roper Logan…

  • Need to let off steam

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    Jane Shaw
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    I am trying to be more positive and not write posts that are negative or moany, but today I really need to get this off  my chest as I am so upset. The other day someone told Emily that I only care about myself, which upset Emily. I don’t have an issue with the child,…

  • What a month!

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    Jane Shaw
    in

    June should be my happy month as it is my birthday and wedding anniversary, but it is rarely something to enjoy. Being ill for so long each anniversary and passing year marks another with no improvement in my health and no improvement in the attitudes of those around or and real progress towards proper diagnosis…

  • Millions Missing

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    Jane Shaw
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    Today marks #ME Action’s, Millions Missing Campaign.  This is a worldwide day of protest for those with ME/CFS. “On May 25th, 2016 #MEAction is global day of action for equality for ME. ME patients, advocates, caregivers, and allies will join together to protest of the lack of government funding for research, clinical trials and medical/public education,…

  • How do I know if it is working?

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    Jane Shaw
    in

    If you have read my previous post you will know I am trying something called Alpha Stim.  It’s an expensive piece of equipment that is meant to help with pain, anxiety and depression. “The Alpha-Stim® M unites Microcurrent Electrical Therapy (MET) with Cranial Electrotherapy (CES) like never before. Microcurrent Electrical Therapy has been proven to…

  • Undies on the outside

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    Jane Shaw
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    I know I said I wasn’t actively fundraising for ME this year, but after a friend did the Undies challenge I decided to give it a go on a wet and miserable Bank Holiday morning, whilst feeling rather rubbish. To add to the fun I got my daughter, husband and cat to join in.  How do we…

  • Little Miss Pardon

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    Jane Shaw
    in

    Little Miss Pardon lived in a little house in a place called Hearingtown.  Everyone could hear from a mouse sneeze to giants footsteps without any problem. Little Miss Pardon couldn’t hear properly and found it difficult to meet people and understand them. One day Little Miss Pardon met Mr Quiet.  “Mmmm” said Mr Quiet.  “Sorry”…

  • Question Time – Question 4

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    Jane Shaw
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    Question 4“How do you decide where to go on holiday?We always tend to go somewhere max of 3 hours away as I find the travelling hard, hubby doesn’t like long drives and Emily hates being in the car. Before we had Emily we used to go on peaceful Lakes and Mountain holidays, but airports are…

  • Question Time – Question 3

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    Jane Shaw
    in

    Question 3Might sound a stupid question, but does anyone know a simple app for recording when you take medication?? I am ok with ones I take at same time every day, but those I take as needed like painkillers I can never remember what I have taken and when. I try to write it down,…

  • Question Time- Question 2

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    Jane Shaw
    in

    Question 2“How do you stop people from upsetting you or annoying you. Emily has a book about temper and it says quite rightly you can’t change what other people do, but you can change how you react to what they do. I am really sick of being upset and angry with people, it’s a waste…