Category: Uncategorized
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Being visible
Anyone who watched or heard about the wedding of Princess Eugenie will know that she had her dress designed to show off a scar from Scoliosis surgery that she had when she was 12. It was very brave of her and unusual for the Royal family who usually keep health matters secret. In fact it was…
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What do you see?
Over the Summer Emily had a piece of homework. She had to draw 5 Russian Dolls and then inside them she had to write; how outsiders see me how family see me; how friends see me; how I see me 5 things about me. I am not sure of the significance of the Russian Dolls,…
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Time and Tide Waits for No Man or Woman!
All through life we are expected to make progress, meet milestones and improve ourselves. So what do you do when you have an illness that halts progress and self development? And what do you do when you feel like your life stopped 20 years ago and you are still getting older but not moving on?…
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Oh I Do Like to Be Beside the Seaside! But It’s Hard Work
Summer holidays have started and most people are going away, looking forward to travelling and seeing new places and either relaxing or having new adventures. For people with ME/CFS (and other conditions I am sure), it’s a difficult and for many impossible. I like going to places and seeing something different. Choosing a holiday for…
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In Sickness and Poetry
I took Emily to a kids poetry workshop earlier this week with Conrad Burdekin. It was great fun and Conrad showed us how to form a basic poem. Those of you who follow me will know I write about my illness, to give me an outlet for frustrations and to talk about how it makes me…
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Dark Nights
I am posting this with trepidation as I don’t want to be criticised or thought badly of, but having shared with a few people who have said it is good and powerful I am going to bite the bullet. Warning emotional content, you don’t have to read it, written a few nights ago around 1am.…
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Negative for Pain!
Back in September I purchased two Ionisers to use as Air Fresheners. After a couple of weeks I realised that my pain had been much better and I wasn’t taking as many pain killers. I didn’t think a huge amount of it as Emily has just gone back to school so my routine had settled…
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Daily Living with ME pt6
Way back in 1990 I began training to be a nurse. It was great, I loved it so much, but sadly like many other things in my life it was brought to an end by ill health. When we were assessing patients we used a model called Activities of Daily living devised by Roper Logan…
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Daily Living with ME pt3
Way back in 1990 I began training to be a nurse. It was great, I loved it so much, but sadly like many other things in my life it was brought to an end by ill health. When we were assessing patients we used a model called Activities of Daily living devised by Roper Logan…