Category: Uncategorized
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Question Time- Question 1
I have been asking a few questions on some of the ME forums I belong to and have got some interesting answers and advice.Question 1Anyone else find it hard to read and understand and take in written information? I have been trying to read stuff about behaviour issues and other such things and it just…
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Brilliant view
I have to share this view of ME that I read the other day, I am sure all sufferers will relate to it and the coping strategies are very clever. Sister’s cafe article. The blog looks like a good one to follow has many different topics, one about homework that I will be checking out too, like the…
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Party Time, arrrggghh
I have just read an article by another ME sufferer who says they enjoy celebrations, I am afraid they fill me with dread and I find them really hard work, but do my best and accept the consequences. I can’t believe that my baby will be 9 tomorrow we have gone from this to this…
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Little Miss Brainfog
Little Miss Brainfog lived in a normal house in a normal street, surrounded by normal people. Little Miss Brainfog also looked normal, but had an illness with and extraordinarily long name, Myalgic Encephalomyelitis, which it is easier to call ME. Like it’s name Myalgic Encephalomyelitis is also rather complicated and extraordinary. The illness made Little…
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If you’re Happy and you know it…….
but what if you aren’t happy, or don’t seem to know what happiness is? We seem to have got in a rut of misery and even doing nice things doesn’t make us feel good and everything seems hard work and not worth the effort. We just seem so bogged down and can’t see the wood…
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Who am I?
It’s been a while since I posted, Christmas was quite overwhelming in a number of ways and very difficult. New Year was quieter, but depressing! I don’t really like Christmas and New Year as for me it marks another year with no progress and another year older having got nowhere, so I get rather down,…
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Merry Christmas everyone
Well only a few days to go before the big day, we seem to have been in the run up for months. I am not sure how I am keeping going as there seems to be one problem after another on top of Christmas preparations and school holidays and normal routine. I am not sleeping…
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Painful music
Have you ever notice that songs are usually about some powerful emotion, usually love or loss.Last weekend when it was cold and we kept saying oh the wind is so cold and song popped into my head and have been bugging me ever since, I finally looked it up today it is It’s all coming back…
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Sense and Sensibility
According to English 306Sense is “possessing judgement and intelligence” whilst sensibility is “capacity for refined emotional response to feelings and experiences, involving delicate sensitivity to moral and aesthetic issues”I am not that familiar with the text of the book, but when reading about it this quote jumped out at me;“My illness has made me think… I considered the…
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Theories
I have seen a few interesting ME theories this week and can relate to many of the things mentioned, they can be found on the following links http://www.cortjohnson.org/blog/2015/10/08/chronic-fatigue-syndrome-fibromyalgia-and-migraine-the-legitimacy-problem/ http://www.cortjohnson.org/forums/resources/when-panic-isnt-dr-bell-on-maggies-me-cfs-and-fibromyalgia-story.237/ http://www.cortjohnson.org/forums/threads/dr-david-bell-on-low-blood-volume-in-chronic-fatigue-syndrome.3074/ http://www.cortjohnson.org/blog/2015/10/12/lactic-acidosis-causing-cfs-fm-symptoms/ It remains to be seen if anything comes of the research, but they do sound interesting and along the right lines. To comment on…