Tag: ME. CFS

  • ME and Pain

    I am in ridiculous amounts of pain at the moment, it is going right through me and I can’t tell if it’s my back or my stomach or both!  It was the same yesterday, it is making me feel really sick too.  It was like this yesterday and painkillers didn’t help, so trying to avoid…

  • ME and guilt

    Been feeling really guilty and anxious this weekend.  There is a  lot going on and I am dependent on Rob to get things done, which makes me feel bad as he has a full time job and deserves a break at weekends, but weekends get so manic trying to fit things in and keep up…

  • Another year older

    Thank you to everyone for my birthday and anniversary messages. We went out for lunch at http://2oxfordplace.com/ and went to see a small exhibition at Thackray Medical Museum http://wellcomecollection.org/…/georgie-meadows-stitched-dr…. I had a party tea with Emily. I felt pretty rubbish by the end of the day, it’s a shame ME doesn’t give us one day off! Rob got me…

  • Anniversaries

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  • ME and Me

    I am really wound up today, my heart is pounding, probably from sitting in Drs waiting room for over an hour, it was noisy, bright and uncomfortable, I feel rubbish and want to be able to rest to cope with Emily later, all I ever seem to do is ask her to be quieter calm…

  • ME and My Mum 20 Questions.

    There is a set of questions going round on Facebook at the moment that you are supposed to ask your kids.  I tried it on Emily, she was not impressed as said why are you asking me these you know I don’t know, but some of her answers were quite enlightening and a reflection of…

  • ME vs Cancer

    Here is a great article about a fellow sufferer Jenny Andrews, who has had both ME and cancer and her experiences of the difference in attitude and treatment between the two and her descriptions of having ME. http://www.dailymail.co.uk/health/article-2861107/I-d-CANCER-chronic-fatigue-syndrome-Woman-s-battled-condition-10-years-says-people-unfairly-labelled-attention-seekers.html There are some great quotes“Jose Montoya, a professor of medicine at Stanford University and a leading expert…

  • Awareness Videos and Talk to me.

    Action for ME have released a series of videos on you tube to show what it is like to have some of the ME symptoms, check them out Action for ME You Tube.  They cover Speech problems, Post Exertional Malaise, Muscle pain, Sleep problems, Headaches and Light and Sound sensitivity. I realised I have posted a lot…

  • Story behind the photos!

    Every picture tells a story or so they say, or the camera never lies, but in this case the pictures were not telling the truth.  They show happy faces, they show peace, they show fun.  They don’t show the pain, the difficulty getting ready and getting there, the payback for doing it, the effects of…

  • ME, tell it how it is

    I have come across many good graphics in the last few days and as I don’t have the energy for writing today I thought I would share those instead To comment on this post, please click the header to this article. This will take you to my blog on blogger.com