Tag: ME. CFS

  • Sense and Sensibility

    According to English 306Sense is “possessing judgement and intelligence” whilst sensibility is “capacity for refined emotional response to feelings and experiences, involving delicate sensitivity to moral and aesthetic issues”I am not that familiar with the text of the book, but when reading about it this quote jumped out at me;“My illness has made me think… I considered the…

  • Theories

    I have seen a few interesting ME theories this week and can relate to many of the things mentioned, they can be found on the following links http://www.cortjohnson.org/blog/2015/10/08/chronic-fatigue-syndrome-fibromyalgia-and-migraine-the-legitimacy-problem/ http://www.cortjohnson.org/forums/resources/when-panic-isnt-dr-bell-on-maggies-me-cfs-and-fibromyalgia-story.237/ http://www.cortjohnson.org/forums/threads/dr-david-bell-on-low-blood-volume-in-chronic-fatigue-syndrome.3074/ http://www.cortjohnson.org/blog/2015/10/12/lactic-acidosis-causing-cfs-fm-symptoms/ It remains to be seen if anything comes of the research, but they do sound interesting and along the right lines. To comment on…

  • Facebook withdrawal!

    Well I am on day 7 without Facebook as my my Give It Uptober.  I don’t miss it except for something to keep me occupied as I have a tendency to overdo it if not distracted by Facebook as I need to be doing something.  It is a bit weird not knowing what people are doing…

  • Give It Uptober

    October is the month where people give things up for charity.  I think it started with people going sober for a month or giving up luxuries and donating the money saved during the month to charity.  The idea has been adopted by some ME charities including Let’s Do it for ME and Invest in ME who state “Simple version…

  • Sadly for Sale

    I have several cross stitch kits, some unopened, others part done. Due to my ME I find cross stitch too difficult so I am looking to either sell the kits or maybe pay someone to stitch them for me, open to offers either way.  I am so sad to let these go, but my ME…

  • ME is real and it’s bad

    I have seen a few things this week trying to get across the impact of ME and how it affects us Firstly an article from Health Rising, “The authors looked at median and mean quality of life scores. The median scores are a more accurate measurement of a community because they’re not skewed by people with…

  • Thank you ME

    Before I begin I want to say sorry to the many of you for which this would have been impossible and I hope I haven’t caused any upset, I know I often get upset when I read about what others are able to do and know that I couldn’t even consider doing. This is unusual…

  • Meet Jenny

    Jenny has taken up the challenge of running her own handmade jewellery business, Decadent Dragonfly, from home. She makes original and bespoke pieces of jewellery from a range of materials, and generously donates a portion of profits to Invest in ME. Here she talks about her inspirations and hopes for the future and how she…

  • Steps…..

    Today was Emily’s school year 6 leavers service in church.  Only 3 years and it will be her turn!  Time moves on so fast and I feel like I have been left behind as I am so stuck with this stupid illness.  I try to move on and be happy and take pleasure from things,…

  • I want to resign!

    The other day having a conversation with Rob as I was upset that I rarely get to do things I want or enjoy doing cos I am too worn out form doing every day stuff and was saying that people who work full time and do all their own housework get more pleasurable things done…