Tag: ME awareness

  • ME is real and it’s bad

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    Jane Shaw
    in

    I have seen a few things this week trying to get across the impact of ME and how it affects us Firstly an article from Health Rising, “The authors looked at median and mean quality of life scores. The median scores are a more accurate measurement of a community because they’re not skewed by people with…

  • Meet Jenny

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    Jane Shaw
    in

    Jenny has taken up the challenge of running her own handmade jewellery business, Decadent Dragonfly, from home. She makes original and bespoke pieces of jewellery from a range of materials, and generously donates a portion of profits to Invest in ME. Here she talks about her inspirations and hopes for the future and how she…

  • ME and Me

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    Jane Shaw
    in

    I am really wound up today, my heart is pounding, probably from sitting in Drs waiting room for over an hour, it was noisy, bright and uncomfortable, I feel rubbish and want to be able to rest to cope with Emily later, all I ever seem to do is ask her to be quieter calm…

  • ME vs Cancer

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    Jane Shaw
    in

    Here is a great article about a fellow sufferer Jenny Andrews, who has had both ME and cancer and her experiences of the difference in attitude and treatment between the two and her descriptions of having ME. http://www.dailymail.co.uk/health/article-2861107/I-d-CANCER-chronic-fatigue-syndrome-Woman-s-battled-condition-10-years-says-people-unfairly-labelled-attention-seekers.html There are some great quotes“Jose Montoya, a professor of medicine at Stanford University and a leading expert…

  • All Princessed out

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    Jane Shaw
    in

    Last few days, May Offer, any orders for cards or bracelets, money will be donated to ME fundraising. Items won’t be made until June though, due to school holidays, check out http://www.craftyjanes.co.uk/gallery.shtml and https://www.pinterest.com/emilysmummy/made-by-me/ for ideas. My current total for the fundraising is £459.01 plus gift aid of £92.98, which is £551.99!  The Princess team total is over £5,000…

  • Awareness Videos and Talk to me.

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    Jane Shaw
    in

    Action for ME have released a series of videos on you tube to show what it is like to have some of the ME symptoms, check them out Action for ME You Tube.  They cover Speech problems, Post Exertional Malaise, Muscle pain, Sleep problems, Headaches and Light and Sound sensitivity. I realised I have posted a lot…

  • Story behind the photos!

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    Jane Shaw
    in

    Every picture tells a story or so they say, or the camera never lies, but in this case the pictures were not telling the truth.  They show happy faces, they show peace, they show fun.  They don’t show the pain, the difficulty getting ready and getting there, the payback for doing it, the effects of…

  • ME, tell it how it is

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    Jane Shaw
    in

    I have come across many good graphics in the last few days and as I don’t have the energy for writing today I thought I would share those instead To comment on this post, please click the header to this article. This will take you to my blog on blogger.com

  • Its not all about me or ME

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    Jane Shaw
    in

    Yesterday is now catching up with me and I need to rest. I have lots of ideas for my blog and my photos. Thank you to everyone who supported me and the ME cause. I also want to say, its not all about me or ME, many people live with serious health problems and disabilities…

  • Princess for a day, reality hits!

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    Jane Shaw
    in

    So much for feeling like a Princess, I feel awful.  The build up to the day and preparing things has left me exhausted, in lots of pain, feeling sick and dizzy, with a sore throat, serious tingling in my feet, legs, hands and face and poor concentration.  The events of the last few days, having…