Tag: ME awareness

  • Millions Missing

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    Jane Shaw
    in

    Today marks #ME Action’s, Millions Missing Campaign.  This is a worldwide day of protest for those with ME/CFS. “On May 25th, 2016 #MEAction is global day of action for equality for ME. ME patients, advocates, caregivers, and allies will join together to protest of the lack of government funding for research, clinical trials and medical/public education,…

  • Overwhelmed again.

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    Jane Shaw
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    I am feeling totally over whelmed at the moment. I had to be rescued by RAC yesterday.  The driver seatbelt has been jamming for a while.  Rob rang dealer who said they couldn’t look at it until end of May and to ring RAC if stuck.  Yesterday it got stuck in school car park so…

  • Undies on the outside

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    Jane Shaw
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    I know I said I wasn’t actively fundraising for ME this year, but after a friend did the Undies challenge I decided to give it a go on a wet and miserable Bank Holiday morning, whilst feeling rather rubbish. To add to the fun I got my daughter, husband and cat to join in.  How do we…

  • April Makes

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    Jane Shaw
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    Card from Dee Crafts, papers printed using Craftville backing paper builder.  Union jack paper is paper strips from Yellow Moon, water made using Sizzix grass die and sun using Sizzix sun sizzlet.  Greeting created with powerpoint. Made using my own photo of sun rise through Emily’s bedroom window with dreamcatcher in front.  Dotty card blank from Dee craft. May…

  • May – ME Awareness month

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    Jane Shaw
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    Myalgic Encephalomyelitis (M.E.) is a disabling and chronic illness, devastating the lives of 250,000 people in the UK. May is ME awareness month, with the main day being May 12th. Help us raise awareness and raise funds for ME research. I have had ME for nearly 20 years and there is still no know diagnosis…

  • Princess for ME 2016

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    Jane Shaw
    in

    Some of you may remember I took part in this event last year and got some great photos, see  http://poohbear71.blogspot.co.uk/2015/05/princess-for-day-reality-hits.html,http://poohbear71.blogspot.co.uk/2015/05/its-not-all-about-me-or-me.html http://poohbear71.blogspot.co.uk/2015/05/story-behind-photos.htmlhttp://poohbear71.blogspot.co.uk/2015/05/all-princessed-out.html This year I am not able to do such a big event this year, but hope to take part in a smaller way.  Last year the ME Princess group held an auction, but this is…

  • Question Time- Question 1

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    Jane Shaw
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    I have been asking a few questions on some of the ME forums I belong to and have got some interesting answers and advice.Question 1Anyone else find it hard to read and understand and take in written information? I have been trying to read stuff about behaviour issues and other such things and it just…

  • Little Miss Brainfog

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    Jane Shaw
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    Little Miss Brainfog lived in a normal house in a normal street, surrounded by normal people. Little Miss Brainfog also looked normal, but had an illness with and extraordinarily long name, Myalgic Encephalomyelitis, which it is easier to call ME. Like it’s name Myalgic Encephalomyelitis is also rather complicated and extraordinary. The illness made Little…

  • A Year in Pictures

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    Jane Shaw
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    I don’t have the time or energy to write a long year summary, but it is good to review the year and realise I did actually do something and there is often good reason for my fatigue and pain, so here it is 2015 in pictures. Emily’s 8th Birthday Disney on Ice Loft Conversion From…

  • Give It Uptober

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    Jane Shaw
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    October is the month where people give things up for charity.  I think it started with people going sober for a month or giving up luxuries and donating the money saved during the month to charity.  The idea has been adopted by some ME charities including Let’s Do it for ME and Invest in ME who state “Simple version…