Tag: disability
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Its not all about me or ME
Yesterday is now catching up with me and I need to rest. I have lots of ideas for my blog and my photos. Thank you to everyone who supported me and the ME cause. I also want to say, its not all about me or ME, many people live with serious health problems and disabilities…
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Wear it for ME
Browsing on Cafepress I found some great clothing for ME awareness. I think they are great, but having spent quite a bit on stuff for the fundraising can’t really justify buying any, but thought I would share them for my awareness campaign as I can relate to all the slogans. Sick and Tired Serenity Chronic Illness…
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Nothing Feels Right
I don’t like moaning as I know many are in similar or much worse positions than me and they manage to get on with life and not feel sorry for themselves, but everything feels so out of sorts at the moment. Anything I do be it essential, necessary or through choice seems wrong. Take this…
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Needs, Wants and Abilities
I wrote this last week, only just got chance to scan it in as the week went from bad to worse and I found it even more difficult to manage my needs and the needs of others with my PA being off sick and the bad press about ME. I am currently feeling rubbish and…
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Christmas Sprit
Yesterday was the annual Christmas fair and light switch on in Rothwell, its a great day and well attended. Emily had a brilliant face painting done by Artifaces and went on some of the fairground rides. Later on we went back for the lights switch on and fireworks. Well done Rothwell Carnival Committee. Thankfully it stayed dry and…
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What can I do?
I am so fed up of everything I do having consequences and affecting me so much. I know I am always doing too much and doing things that are not good for me, but if I cut out all the bad things what would be left. Life goes on and you can either go with…
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Frustrations
Its been a very frustrating day today. As usual I was up early, its nice to get a bit of peace and quiet before anyone else gets up, but I just started looking at something I needed to do and Emily got up, so that was that. I got her breakfast ready and then it…
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On the scrapheap!
Thank you to the man at the door yesterday who asked me if I was retired!! I know I look bad sometimes and am getting old, but I am 20 years off retirement age and how can you retire when you have never had a career or a proper stable job? It is depressing though…
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Are you listening?
I am having a bad day today feeling very sick and dizzy after attending the first session of 5 ways to wellbeing yesterday. Then a hectic morning cleaning up after the cat, trying to get Emily to get ready and taking her to school and then having to go to shop to buy milk!! Yep I am…
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Word Play
I have not been up to writing a lot, but have been playing with some words and what they mean to me. The first is Frustrations Fatigue Requirements Uncertainty Stamina (lack of) Tension Restrictions Abilities Time Independence (lack of ) Overwhelmed Normality (lack of) Stereotypes (negative) Next is Symptoms Sinus pain Yeast infection Muscle pain…