Tag: disability

  • I lost 4 months to PIP

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    Jane Shaw
    in

    The dreaded brown envelope, telling that my DLA was ending and that I needed to apply for PIP, landed on my doormat at the end of March. I had been awaiting its arrival for 3 years. It gave me just 3 weeks to apply, 2 of those weeks were school holiday and the form was…

  • 20 years and counting!

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    Jane Shaw
    in

    What have you been doing for the last 20 years?  Me I have been busy living with ME.  Here is my latest rhyme. 20 years with M.E, 20 years since things went wrong. 20 years since I lost me, 20 years, it’s far too long. 20 years of missing out, 20 years of feeling ill.…

  • Tears and Salad pt2

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    Jane Shaw
    in ,

    My last post ended as we boarded the Eurostar for Disneyland Paris.  The assistance was great and we had seats at a table, so far so good. Food always causes problems, but as I had ordered a GF meal I thought it would be ok.  I got a GF chocolate oat bar, a yogurt and…

  • Need to let off steam

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    Jane Shaw
    in

    I am trying to be more positive and not write posts that are negative or moany, but today I really need to get this off  my chest as I am so upset. The other day someone told Emily that I only care about myself, which upset Emily. I don’t have an issue with the child,…

  • Elephant hunting

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    Jane Shaw
    in

    Over the bank holiday weekend Emily and I went hunting for Elephants in Sheffield.  Many of you may think I have gone mad so I had better explain. Sheffield Children’s Hospital is fundraising by displaying 58 Elephant sculptures, each one is 1.6m high and made of fibre glass and then decorated in an amazing variety…

  • Little Miss Pardon

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    Jane Shaw
    in

    Little Miss Pardon lived in a little house in a place called Hearingtown.  Everyone could hear from a mouse sneeze to giants footsteps without any problem. Little Miss Pardon couldn’t hear properly and found it difficult to meet people and understand them. One day Little Miss Pardon met Mr Quiet.  “Mmmm” said Mr Quiet.  “Sorry”…

  • Little Miss Brainfog

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    Jane Shaw
    in

    Little Miss Brainfog lived in a normal house in a normal street, surrounded by normal people. Little Miss Brainfog also looked normal, but had an illness with and extraordinarily long name, Myalgic Encephalomyelitis, which it is easier to call ME. Like it’s name Myalgic Encephalomyelitis is also rather complicated and extraordinary. The illness made Little…

  • What is the point?

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    Jane Shaw
    in

    I wrote this nearly a week ago, but feel so ashamed it has taken until now to pluck up the courage to share it and I still don’t know if I am doing the right thing. 1am 14th November Can’t sleep again, so upset and overwhelmed with life and possessions.  I am so ashamed and…

  • Pride and Prejudice Part 1

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    Jane Shaw
    in

    No, I am not on a trip to the library, but as usual trying to juggle everyday life and illness. The book title kept popping into my head, I think because of the daily internal arguments over what I should be doing, could be doing, can do, can’t do and what is best for me…

  • Steps…..

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    by

    Jane Shaw
    in

    Today was Emily’s school year 6 leavers service in church.  Only 3 years and it will be her turn!  Time moves on so fast and I feel like I have been left behind as I am so stuck with this stupid illness.  I try to move on and be happy and take pleasure from things,…