Tag: CFS
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Be active, lol!
At the 5 ways session today we started to talk about being active and how that improves well being. I felt rather awkward and there is no point in saying I can’t be active, no one understands. If I am too active it makes me more ill and results in pain and fatigue that most…
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Word Play
I have not been up to writing a lot, but have been playing with some words and what they mean to me. The first is Frustrations Fatigue Requirements Uncertainty Stamina (lack of) Tension Restrictions Abilities Time Independence (lack of ) Overwhelmed Normality (lack of) Stereotypes (negative) Next is Symptoms Sinus pain Yeast infection Muscle pain…
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Think it will be goodbye for a while
School holidays start on Wednesday so I am not going to be up to posting much unless Emily is occupying herself and even then she calls on me every few minutes so its hard to focus on anything. I also have activities to take her to and accompany her on as well as a family…
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Mixed feelings, still busy and still exhausted pt1
I am sitting here not sure what to do, I am tired and dizzy, but can’t do nothing as restless too. It continues to be a busy time and is difficult to manage everything and the ME. It makes me feel a bit of a fraud sometimes as there is so much to do and…
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Interesting Finds today
On my facebook news feed today there were a few things that caught my eye. Firstly an article about the benefit of crafting on mental health. I had better find something to craft!! Sadly I have other jobs to do like making my breakfast cereal, so that I know it is gluten free and as sugar…
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What to do?
I really don’t know what to do with myself at the moment I am feeling very weak and tired, dizzy, sick, achy and my brain feels full of cotton wool so can’t concentrate on things. Spent a lot of yesterday sat in front of computer just looking at things, but not really doing anything, that’s…
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Useful tips for those living with someone with ME
When I was awake in the middle of the night I came across a blog post sharing tips for living with someone who had ME it just shows how little things that others might not even notice can affect those with ME and how a bit of thought can make life a little better. To comment on…
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In a Whirl
Its been a crazy few weeks, following my Grandma’s death, arranging the funeral and clearing her house and we have only been involved in a small part of it. The funeral was on Monday, very emotional, but went smoothly and lots of family and friends joined us to say goodbye. June has just passed in…
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ME Carers Meet Michael
This Michael’s view of ME and caring for his wife Wendie who has severe ME. My life as a carer? Oh where do I start with being a carer for someone with ME? There are so many aspects to being a carer. Some people care for a disabled child along with the rest of their…
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Interesting? Updated
I have been offline for a few days due to decorating the room where our PC is (I wasn’t doing the decorating, but it feels like I have!!) I am struggling at the moment so can’t post much, but these articles caught my eye this week Third of ME patients misdiagnosed, with full research text…