Tag: CFS

  • Princess update

    The photos went well if somewhat exhausting, really feeling it now, will post main photos on Tuesday, but here is one to keep you going. It’s Emily by the way not me! To comment on this post, please click the header to this article. This will take you to my blog on blogger.com

  • I am well aware!

    What a day yesterday, I was feeling so ill and down and convinced myself I was so pathetic, I was so stressed frustrated and feeling useless I needed to rest but couldn’t I was so fed up I wanted to scream cry etc but that won’t make it any better will it?  Is it right to…

  • Wear it for ME

    Browsing on Cafepress I found some great clothing for ME awareness.  I think they are great, but having spent quite a bit on stuff for the fundraising can’t really justify buying any, but thought I would share them for my awareness campaign as I can relate to all the slogans. Sick and Tired Serenity Chronic Illness…

  • Distinct Changes found in ME. Does it actually mean anything?

    Today’s news in the ME world is Distinct Changes found in ME.  Just another story in the long debate of is it Physical or is it all in the mind.  If the claims are true they are talking about changes found in first 3 years of illness so how does this help those of us…

  • What is in a Name?

    Well the latest in the ME/CFS world is what to call it again? But how important is a name?  My name is Jane, does that tell you what I am like, how I behave, what I look like?  My name means gracious, gift from god, I guess that would depend who you ask as to…

  • Physio Pain Diary 12/12 to 18/12 Update 18/12

    One of the reasons I started my blog was to keep track of symptoms and treatments, but have not done this so far.  My Physio always asks me how I did after the last treatment, but as I only go once a month I can never remember, so I am hoping to keep a better…

  • Lost

    I feel like I got totally lost with everything this week.  Emily was off sick on Monday so I didn’t get to 5 ways.  It was quite nice to have a quiet day with Emily, but shame she had to be ill to get that.  She is still coughing, but feels ok.  I now have…

  • Feeling guilty and pathetic

    How do you cope when you hear about other people being ill with serious illness? Does it make you feel guilty? And like you are making a fuss over nothing? And that you should be able to get up and carry on like others do?My thoughts for today.  Many people have awful illnesses or problems…

  • Frustrations

    Its been a very frustrating day today.  As usual I was up early, its nice to get a bit of peace and quiet before anyone else gets up, but I just started looking at something I needed to do and Emily got up, so that was that.  I got her breakfast ready and then it…

  • Struggling and calender pin up!

    The days and weeks seem to be getting more difficult and my energy is quickly depleted, but then when I realise how much we are doing its hardly surprising.  As today is 1st of October I turned my calender over to find there is hardly day where I don’t have something on and that’s on…