Tag: ME research
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Theories
I have seen a few interesting ME theories this week and can relate to many of the things mentioned, they can be found on the following links http://www.cortjohnson.org/blog/2015/10/08/chronic-fatigue-syndrome-fibromyalgia-and-migraine-the-legitimacy-problem/ http://www.cortjohnson.org/forums/resources/when-panic-isnt-dr-bell-on-maggies-me-cfs-and-fibromyalgia-story.237/ http://www.cortjohnson.org/forums/threads/dr-david-bell-on-low-blood-volume-in-chronic-fatigue-syndrome.3074/ http://www.cortjohnson.org/blog/2015/10/12/lactic-acidosis-causing-cfs-fm-symptoms/ It remains to be seen if anything comes of the research, but they do sound interesting and along the right lines. To comment on…
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Give It Uptober
October is the month where people give things up for charity. I think it started with people going sober for a month or giving up luxuries and donating the money saved during the month to charity. The idea has been adopted by some ME charities including Let’s Do it for ME and Invest in ME who state “Simple version…
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How do you make people aware without boring them?
How do I raise awareness and tell people what ME is really like without boring them and giving them information they are not interested in? When I asked this question on facebook an ME sufferer replied saying; “What about an obstacle course consisting of having to try and walk through porridge in a weighted jacket…
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Fundraising Update – How do you raise awareness and money whilst keeping within limitations?
Well it’s all going well so far, I have got £240 donated, which is nearly half way to the target I set, which was actually totally random, but would be great if I could reach it. My promotional goodies have arrived and I have spoken to Emily’s teacher and am hoping that the children will…
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Princess Update
I am pleased to announce that I have been donated £75 already on my Just Giving Page, you can also donate by text send JEMS58 and amount to 70070. Donating through just giving means you can claim gift aid if a tax payer which increases my total 🙂 There have to be some benefits to paying tax!I…
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Princess for a Day
Every girl dreams of being a princess. We saw Cinderella recently and I certainly dreamy of having a dress like that I also love the dresses in Frozen, even though they are not real. Many kids costume makers are cashing in on those. And of course we would all love to have “Princess” Kate’s wardrobe,…
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Two new medical articles about ME
Guest post by Rob Shaw This week saw two articles released about ME. One was about fairly poor piece of research that got lots of press attention; the other was a draft National Institutes for Health (NIH) report in the US. The first one, Rehabilitative therapies for chronic fatigue syndrome: a secondary mediation analysis of…
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ME, What we are up against! Updated again!
This article has been written in today’s Telegraph ME – Fear of exercise and other papers. I wish I was just afraid to exercise! I am afraid of the consequences when I do exercise, pain, fatigue, dizziness to mention just a few. The feeling of utter exhaustion from walking a small distance so much so that I…
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ME Fundraising appeal
ME research is massively underfunded and until the funding is available no one knows exactly what causes it and if there is any treatment. It continues to be a greatly misunderstood illness and those of us with it become very isolated. Please take time to read this, taken from Action for ME on facebook M.E.…
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Reality dawns!
I am constantly trying to work out how to have the time and energy for things, in reality I have very little time and energy and use them on things that need to be done to keep every day life ticking over and getting essential rest, so there is very little left for doing the…