Tag: ME. CFS
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Daily Living with ME pt6
Way back in 1990 I began training to be a nurse. It was great, I loved it so much, but sadly like many other things in my life it was brought to an end by ill health. When we were assessing patients we used a model called Activities of Daily living devised by Roper Logan…
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Daily Living with ME pt5
Way back in 1990 I began training to be a nurse. It was great, I loved it so much, but sadly like many other things in my life it was brought to an end by ill health. When we were assessing patients we used a model called Activities of Daily living devised by Roper Logan…
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Daily Living with ME pt4
Way back in 1990 I began training to be a nurse. It was great, I loved it so much, but sadly like many other things in my life it was brought to an end by ill health. When we were assessing patients we used a model called Activities of Daily living devised by Roper Logan…
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Elephant hunting
Over the bank holiday weekend Emily and I went hunting for Elephants in Sheffield. Many of you may think I have gone mad so I had better explain. Sheffield Children’s Hospital is fundraising by displaying 58 Elephant sculptures, each one is 1.6m high and made of fibre glass and then decorated in an amazing variety…
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What a month!
June should be my happy month as it is my birthday and wedding anniversary, but it is rarely something to enjoy. Being ill for so long each anniversary and passing year marks another with no improvement in my health and no improvement in the attitudes of those around or and real progress towards proper diagnosis…
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Overwhelmed again.
I am feeling totally over whelmed at the moment. I had to be rescued by RAC yesterday. The driver seatbelt has been jamming for a while. Rob rang dealer who said they couldn’t look at it until end of May and to ring RAC if stuck. Yesterday it got stuck in school car park so…
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Undies on the outside
I know I said I wasn’t actively fundraising for ME this year, but after a friend did the Undies challenge I decided to give it a go on a wet and miserable Bank Holiday morning, whilst feeling rather rubbish. To add to the fun I got my daughter, husband and cat to join in. How do we…
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May – ME Awareness month
Myalgic Encephalomyelitis (M.E.) is a disabling and chronic illness, devastating the lives of 250,000 people in the UK. May is ME awareness month, with the main day being May 12th. Help us raise awareness and raise funds for ME research. I have had ME for nearly 20 years and there is still no know diagnosis…
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Princess for ME 2016
Some of you may remember I took part in this event last year and got some great photos, see http://poohbear71.blogspot.co.uk/2015/05/princess-for-day-reality-hits.html,http://poohbear71.blogspot.co.uk/2015/05/its-not-all-about-me-or-me.html http://poohbear71.blogspot.co.uk/2015/05/story-behind-photos.htmlhttp://poohbear71.blogspot.co.uk/2015/05/all-princessed-out.html This year I am not able to do such a big event this year, but hope to take part in a smaller way. Last year the ME Princess group held an auction, but this is…
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Useless.com
I spend a lot of time feeling totally useless, and guilty. Last week was particularly bad after, trying to sort out my craft stuff and move it to be more accessible, but of course when I do anything like that I have to pay for it and have landed myself in bed a few times from…