Tag: CFS

  • ME awareness

    Well today is ME awareness day.  I am certainly aware of mine, feeling all round rubbish today.  I wonder how much people really know about ME and what their perceptions are.  it would be interesting to get peoples views.  Many years ago I set out to do a research project, I sent out hundreds of…

  • Overwhelmed and Frustrated

    I am not having a good day today and my plans went out the window early on.  Trying to rest in order to feel better did not help much as my mind was busy with ideas and frustrations.  I spent a lot of the time playing useless games on my phone, I really must delete…

  • Explanation for Dizziness.

    I have just read this article, well skim read it, can’t read properly off the screen.  This may explain my dizziness and problems with standing up quickly.  I have a dizzy sensation most of the time, but go very dizzy if I stand too quickly.  My dizziness is exacerbated by movement eg being in the…

  • Pay back

    Today I feel dreadful, sick, dizzy, tired, sore throat, pain.  All I want to do is curl up in bed.  I can’t do that as my PA is here and keeps talking to me and making loads of noise. I can’t post any more, but this is what happens when I do extra things like…

  • Never knew wrapping could be so exhausting!

    In my effort to help I went into school today to help the PTA with the kids choosing and wrapping presents.  Even though I spent much of the time sitting and no real effort was required it has left me exhausted, I feel sick, dizzy and shaky and am in pain.  I hate this stupid…

  • Unsettled by Wind and Hospital Food Programme (no connection between the two!)

    So much for wanting to rest, I am very unsettled and unable to rest. There are several reasons for this I am over tired and the weather which is very windy is very unsettling when things are blowing about all over the place and I am on my own in the house wondering if other…

  • Wiped Out

    Really wiped out today, so tired, sore throat and mouth, general pain a bit better.  Just want to sleep.  Battled out in the wind to get Emily to school glad of a big heavy car for once.  Just been outside to secure some stuff!!  Its scary and now I am definitely ready to rest, its…

  • Book

    ME and Mummy and ME Copyright © 2013 Jane Shaw All rights reserved. Pg1 ME and Mummy and ME My mummy has two of me, the first is me Emily.  The second is an illness called ME, said M.E which is short for Myalgic Encephalomyelitis. Mummy has had the ME 10 years longer than she…

  • Pain, pain go away……..

    And preferably don’t come back another day! My pain is getting very bad and even with strong painkillers does not subside much.  A lot of it is my own fault.  Doing the craft with the children at the tea time club is a killer as I stand too much, but its not possible to sit…