Tag: assumptions
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Keeping up appearances.
I was talking a to a friend today who is having Chemotherapy as part of a treatment for her MS. Knowing that she was going to lose her hair, a few weeks ago she had her hair cut short and donated her hair to the charity that makes wigs for children with cancer, a lovely…
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Little Miss Brainfog
Little Miss Brainfog lived in a normal house in a normal street, surrounded by normal people. Little Miss Brainfog also looked normal, but had an illness with and extraordinarily long name, Myalgic Encephalomyelitis, which it is easier to call ME. Like it’s name Myalgic Encephalomyelitis is also rather complicated and extraordinary. The illness made Little…
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Pride and Prejudice Part 1
No, I am not on a trip to the library, but as usual trying to juggle everyday life and illness. The book title kept popping into my head, I think because of the daily internal arguments over what I should be doing, could be doing, can do, can’t do and what is best for me…
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ME is real and it’s bad
I have seen a few things this week trying to get across the impact of ME and how it affects us Firstly an article from Health Rising, “The authors looked at median and mean quality of life scores. The median scores are a more accurate measurement of a community because they’re not skewed by people with…
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I want to resign!
The other day having a conversation with Rob as I was upset that I rarely get to do things I want or enjoy doing cos I am too worn out form doing every day stuff and was saying that people who work full time and do all their own housework get more pleasurable things done…
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ME vs Cancer
Here is a great article about a fellow sufferer Jenny Andrews, who has had both ME and cancer and her experiences of the difference in attitude and treatment between the two and her descriptions of having ME. http://www.dailymail.co.uk/health/article-2861107/I-d-CANCER-chronic-fatigue-syndrome-Woman-s-battled-condition-10-years-says-people-unfairly-labelled-attention-seekers.html There are some great quotes“Jose Montoya, a professor of medicine at Stanford University and a leading expert…
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Story behind the photos!
Every picture tells a story or so they say, or the camera never lies, but in this case the pictures were not telling the truth. They show happy faces, they show peace, they show fun. They don’t show the pain, the difficulty getting ready and getting there, the payback for doing it, the effects of…
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Wear it for ME
Browsing on Cafepress I found some great clothing for ME awareness. I think they are great, but having spent quite a bit on stuff for the fundraising can’t really justify buying any, but thought I would share them for my awareness campaign as I can relate to all the slogans. Sick and Tired Serenity Chronic Illness…
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What is in a Name?
Well the latest in the ME/CFS world is what to call it again? But how important is a name? My name is Jane, does that tell you what I am like, how I behave, what I look like? My name means gracious, gift from god, I guess that would depend who you ask as to…
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Why should I?
I have spent large chunks of the last few days in bed as I have been unable to do my normal stuff without feeling too ill and it is already hitting me this morning. BUT why do I feel guilty, why should I try and do more, why should I be up and about and…