Tag: appearances
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Keeping up appearances.
I was talking a to a friend today who is having Chemotherapy as part of a treatment for her MS. Knowing that she was going to lose her hair, a few weeks ago she had her hair cut short and donated her hair to the charity that makes wigs for children with cancer, a lovely…
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Little Miss Brainfog
Little Miss Brainfog lived in a normal house in a normal street, surrounded by normal people. Little Miss Brainfog also looked normal, but had an illness with and extraordinarily long name, Myalgic Encephalomyelitis, which it is easier to call ME. Like it’s name Myalgic Encephalomyelitis is also rather complicated and extraordinary. The illness made Little…
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Merry Christmas everyone
Well only a few days to go before the big day, we seem to have been in the run up for months. I am not sure how I am keeping going as there seems to be one problem after another on top of Christmas preparations and school holidays and normal routine. I am not sleeping…
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Pride and Prejudice Pt2
Well it’s been a stressful weekend with awful events happening affecting people close to me and although I am not directly involved or affected it has been very distressing and makes me feel so helpless and annoyed with myself for complaining about my own issues which seem quite trivial in comparison. It also makes me…
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ME is real and it’s bad
I have seen a few things this week trying to get across the impact of ME and how it affects us Firstly an article from Health Rising, “The authors looked at median and mean quality of life scores. The median scores are a more accurate measurement of a community because they’re not skewed by people with…
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ME and guilt
Been feeling really guilty and anxious this weekend. There is a lot going on and I am dependent on Rob to get things done, which makes me feel bad as he has a full time job and deserves a break at weekends, but weekends get so manic trying to fit things in and keep up…
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ME vs Cancer
Here is a great article about a fellow sufferer Jenny Andrews, who has had both ME and cancer and her experiences of the difference in attitude and treatment between the two and her descriptions of having ME. http://www.dailymail.co.uk/health/article-2861107/I-d-CANCER-chronic-fatigue-syndrome-Woman-s-battled-condition-10-years-says-people-unfairly-labelled-attention-seekers.html There are some great quotes“Jose Montoya, a professor of medicine at Stanford University and a leading expert…
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All Princessed out
Last few days, May Offer, any orders for cards or bracelets, money will be donated to ME fundraising. Items won’t be made until June though, due to school holidays, check out http://www.craftyjanes.co.uk/gallery.shtml and https://www.pinterest.com/emilysmummy/made-by-me/ for ideas. My current total for the fundraising is £459.01 plus gift aid of £92.98, which is £551.99! The Princess team total is over £5,000…
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Story behind the photos!
Every picture tells a story or so they say, or the camera never lies, but in this case the pictures were not telling the truth. They show happy faces, they show peace, they show fun. They don’t show the pain, the difficulty getting ready and getting there, the payback for doing it, the effects of…