Tag: ability

  • I am well aware!

    What a day yesterday, I was feeling so ill and down and convinced myself I was so pathetic, I was so stressed frustrated and feeling useless I needed to rest but couldn’t I was so fed up I wanted to scream cry etc but that won’t make it any better will it?  Is it right to…

  • Wear it for ME

    Browsing on Cafepress I found some great clothing for ME awareness.  I think they are great, but having spent quite a bit on stuff for the fundraising can’t really justify buying any, but thought I would share them for my awareness campaign as I can relate to all the slogans. Sick and Tired Serenity Chronic Illness…

  • How do you make people aware without boring them?

    How do I raise awareness and tell people what ME is really like without boring them and giving them information they are not interested in? When I asked this question on facebook an ME sufferer replied saying;  “What about an obstacle course consisting of having to try and walk through porridge in a weighted jacket…

  • Fundraising Update – How do you raise awareness and money whilst keeping within limitations?

    Well it’s all going well so far, I have got £240 donated, which is nearly half way to the target I set, which was actually totally random, but would be great if I could reach it. My promotional goodies have arrived and I have spoken to Emily’s teacher and am hoping that the children will…

  • Nothing Feels Right

    I don’t like moaning as I know many are in similar or much worse positions than me and they manage to get on with life and not feel sorry for themselves, but everything feels so out of sorts at the moment.  Anything I do be it essential, necessary or through choice seems wrong. Take this…

  • Not Enough Beans

    I found this explanation of ME energy very good and easy to understand, http://sweetbriarsisters.com/blog/cfs-awareness-understanding-crashes/.  I have pasted the full article here; How To Understand CFS Crashes in 5 Minutes or Less If you have a friend with Chronic Fatigue Syndrome you’ve, no doubt, heard about how she’ll crash after an eventful day.  But hearing about such…

  • Needs, Wants and Abilities

    I wrote this last week, only just got chance to scan it in as the week went from bad to worse and I found it even more difficult to manage my needs and the needs of others with my PA being off sick and the bad press about ME. I am currently feeling rubbish and…