Category: Uncategorized

  • How do you make people aware without boring them?

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    Jane Shaw
    in

    How do I raise awareness and tell people what ME is really like without boring them and giving them information they are not interested in? When I asked this question on facebook an ME sufferer replied saying;  “What about an obstacle course consisting of having to try and walk through porridge in a weighted jacket…

  • Princess Update

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    by

    Jane Shaw
    in

    I am pleased to announce that I have been donated £75 already on my Just Giving Page, you can also donate by text send JEMS58 and amount to 70070.  Donating through just giving means you can claim gift aid if a tax payer which increases my total 🙂 There have to be some benefits to paying tax!I…

  • Princess for a Day

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    by

    Jane Shaw
    in

    Every girl dreams of being a princess.  We saw Cinderella recently and I certainly dreamy of having a dress like that I also love the dresses in Frozen, even though they are not real.  Many kids costume makers are cashing in on those. And of course we would all love to have “Princess” Kate’s wardrobe,…

  • Outdoor Play

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    Jane Shaw
    in

    Many of you may have seen the disgusting remark made by Nigel Farage earlier in the week about that immigration divides communities to the extent that children can no longer play outside together.  Really?!  He obviously has little contact with children.  Children do not care about the colour of people’s skin or their background to them they are just other…

  • My Pleasure

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    by

    Jane Shaw
    in

    Living with ME and its limitations can have a huge impact on what is pleasurable.  Things that other people find a pleasure are often hard work.  With so many food intolerances I also get little enjoyment out of eating out or even a piece of chocolate.  My pleasure can be found in a cup of…

  • Everybody Hurts

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    Jane Shaw
    in

    Having a rubbish week this week, pain, fatigue, fighting a throat infection, dizzy weak 🙁 One of my favourite songs popped into my head Everybody Hurts by REM “Everybody Hurts” When your day is longAnd the night, the night is yours aloneWhen you’re sure you’ve had enoughOf this life, well hang onDon’t let yourself go‘Cause…

  • Nothing Feels Right

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    Jane Shaw
    in

    I don’t like moaning as I know many are in similar or much worse positions than me and they manage to get on with life and not feel sorry for themselves, but everything feels so out of sorts at the moment.  Anything I do be it essential, necessary or through choice seems wrong. Take this…

  • Meet Ros

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    Jane Shaw
    in

    Ros is a fellow ME sufferer and has kindly written this about how she expresses her creativity which help her cope with the ME. I have been writing poems for a while but in recent years have turned to writing about M.E. and people with other chronic illnesses . I wanted to express how I and other feel. I…

  • Not Enough Beans

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    by

    Jane Shaw
    in

    I found this explanation of ME energy very good and easy to understand, http://sweetbriarsisters.com/blog/cfs-awareness-understanding-crashes/.  I have pasted the full article here; How To Understand CFS Crashes in 5 Minutes or Less If you have a friend with Chronic Fatigue Syndrome you’ve, no doubt, heard about how she’ll crash after an eventful day.  But hearing about such…

  • ME and Food

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    by

    Jane Shaw
    in

    This article popped up on my facebook feed this morning, written by Esther Rantzen who has a daughter with ME, who now thinks she may have Coeliac not ME as she has found a gluten free diet has made her feel better.  This is possible, but many of us with ME have food intolerances.  A…