Category: discussions
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52 weeks to 52
Last Thursday was my birthday, I always struggle as it marks another year of being ill another year of limitations, another year of no work or income. I have been ill for 25 years and unable to work for 23. There is so much I want to be able to do, but can’t. Only seeing…
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How can I feel I am making progress.
How can I feel I am making progress? Instead of feeling that I am stuck in time and missing out on things and the world moves on without me. I see my daughter growing up and becoming independent and learning so much, she has taken a GCSE this year and has full GCSE’s next year…
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Regrets
As I approach 50 I have been full of regrets and disappointments in the way life has worked out, that I am not able to work or have an income, that time is running out and I haven’t done anything. Wondering where I went wrong and what would have happened if I had made different…
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Holiday cancelled.
If you have been reading my blog you will have seen that we should be away at the moment, but like everyone else our trip has been cancelled. I had hoped to be able to do an imaginary holiday with photos and information about places we ‘visited’, but sadly Emily found it too upsetting and…
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Holiday 2020 (not!)
At Emily’s school they have a holiday in mid June instead of end of May and this year the week fell to include my birthday and wedding anniversary, perfect excuse for a holiday. We don’t have the best of luck with going on holiday, but we didn’t bargain for Coronovirus. Today we should have started…
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Fundraising with Fido
I first saw Therapy Huskies on Facebook soon after my Dad died. I wished I had been able to do something like that for him, he was very frightened and unable to communicate his needs. Mind you he was hallucinating at times too so not sure what he would have made of a big woolly…
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Another year, nothing changes!
This picture really resonates with me. I hate that I have not been able to work for 20 years. I really want to work and have a purpose and an identity, not to mention an income sense of achievement. Yes it’s nice to have a break from work if you have a job, but a…
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2018 at the Shaws
Our main event this year was Emily moving to High School. The process seems to take most of the year with working up to Sats, attending school open events, choosing school and then all the information events at the new school. In our part of Leeds they do transition before the summer holidays so that…
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Shopping with ME
Follow my blog with Bloglovin It’s time to start Christmas shopping again, this isn’t easy if you can’t leave the house or walk around the shops. Shopping in a wheelchair is hopeless, you can’t see anything and you go where the person pushing you wants to go and whizz past anything you might be interested…